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- California Department of Education - 1430 N Street, Sacramento, CA 95814-5901
- Governor's Office: 916-445-2841
- Senate Committee on Rules: 916-651-4151
- Advisory Commission on Special Education (ACSE) -
- Legislative Members:
- Senate Member - Richard Pan [916-651-4006], [916-651-4966 (fax)], [email protected]
- Executive Secretary: Kristin Wright [916-445-4602] [916-327-3706 (fax)] [email protected]
- State Board Liaison: Niki Sandoval, 1430 N Street, Room 5111, Sacramento, CA 95814 [916-319-0827] [email protected]
- Commission Staff Liaison:Matt Traverso, [916-323-3308], [916-327-3706 (fax)], [email protected]
- Legislative Members:
- State Board of Education - The 11-member State Board of Education is California’s K-12 policy-making body for academic standards, curriculum, instructional materials, assessments and accountability. https://www.cde.ca.gov/be/
- Dr. Michael Kirst, State Board President Contact: State Board of Education, 1430 N Street, Room 5111, Sacramento, CA 95814, 916-319-0827
- SBE- meeting minutes Meeting Minutes & Schedule - State Board of Education - CA Dept of ...
https://www.cde.ca.gov/be/mt/
Meeting schedules and minutes of the California State Board of Education meetings.& schedule - SBE Minutes - Meeting Minutes & Schedule (CA Dept of Education)
https://www.cde.ca.gov/be/mt/ms/
Current and past minutes of the California State Board of Education (SBE). - SBE - agenda & schedule - Meeting Minutes & Schedule - State Board of Education (CA Dept of ...
https://www.cde.ca.gov/be/mt/
Meeting schedules and minutes of the California State Board of Education meetings. - SBE - policy, members & staff - Policies, Members, & Staff - State Board of Education (CA Dept of ...
https://www.cde.ca.gov/be/ms/ - SBE - standards & framework - Standards & Frameworks - State Board of Education (CA Dept of ...
https://www.cde.ca.gov/be/st/- Content Standards - Standards & Frameworks (CA Dept of Education)
https://www.cde.ca.gov/be/st/ss/ - Common Core State Standards - Resources (CA Dept of Education)
https://www.cde.ca.gov/re/cc/ - Professional Standards for SNP Personnel - Nutrition (CA Dept of ...
https://www.cde.ca.gov/ls/nu/pd-ps.asp
- Content Standards - Standards & Frameworks (CA Dept of Education)
- SBE - public notices and information - Public Notices - State Board of Education (CA Dept of Education)
https://www.cde.ca.gov/be/pn/pn/ - SBE - commissions & committees -
- Advisory Commission on Charter Schools (ACCS) - In accordance with the requirements of EC Section 47634.2(b) , and for purposes of providing for its own government in keeping with EC Section 33031 , the State Board of Education (State Board) hereby establishes the Advisory Commission on Charter Schools (ACCS). Find out more at: CONTACT: Charter School Staff | [email protected] | 916-322-6029
- https://www.cde.ca.gov
- webcasts: https://www.cde.ca.gov/be/cc/cs/accswbcst.asp
- Advisory Commission on Special Education (ACSE) - The Commission is an advisory body required by Federal (20 USC 1412[a][21]) and State Statute (EC33590-6). The ACSE provides recommendations and advice to the State Board of Education, the State Superintendent of Public Instruction, the Legislature, and the Governor in new or continuing areas of research, program development and evaluation in California special education. Find out more at: CONTACT: Matt Traverso | [email protected] | 916-323-3308
- https://www.cde.ca.gov, The ACSE can be contacted by phone at 916-445-4602, by fax at 916-327-3706, or by the Videophone Line at 916-374-7182.
- ACSE webinar - https://www.cde.ca.gov/sp/se/as/acsemtgwebcast.asp
- ACSE agenda/minutes - https://www.cde.ca.gov/sp/se/as/acsemtg.asp
- California Practitioners Advisory Group - Information about the State Board of Education’s California Practitioners Advisory Group, which provides input regarding local, state, and federal accountability and also serves as the Title I Committee of Practitioners,
- Instructional Quality Commission -https://www.cde.ca.gov/be/cc/cd/cefcc.asp Information about the Instructional Quality Commission, formerly known as the Curriculum Development & Supplemental Materials Commission. he Commission is responsible for advising the SBE on matters related to curriculum and instruction. The Commission: (1) develops and recommends curriculum frameworks; (2) develops and recommends criteria for evaluating instructional materials submitted for adoption; (3) evaluates instructional materials that have been submitted by publishers and makes recommendations to adopt or reject each submission; (4) recommends policies and activities to the SBE, California Department of Education, and local education agencies regarding curriculum and instruction; and (5) advises and makes recommendations to the SBE on implementing the state’s academic content standards.
- Instructional Quality Commission - https://www.cde.ca.gov/be/cc/cd/cefcc.asp
c/o California Department of Education
Curriculum Frameworks & Instructional Resources Division
1430 N Street, Suite 3207
Sacramento, CA 95814
Telephone: 916-319-0881; Fax: 916-319-0172
E-mail: [email protected]
- Instructional Quality Commission - https://www.cde.ca.gov/be/cc/cd/cefcc.asp
- Advisory Commission on Charter Schools (ACCS) - In accordance with the requirements of EC Section 47634.2(b) , and for purposes of providing for its own government in keeping with EC Section 33031 , the State Board of Education (State Board) hereby establishes the Advisory Commission on Charter Schools (ACCS). Find out more at: CONTACT: Charter School Staff | [email protected] | 916-322-6029
- SBE- meeting minutes Meeting Minutes & Schedule - State Board of Education - CA Dept of ...
- Dr. Michael Kirst, State Board President Contact: State Board of Education, 1430 N Street, Room 5111, Sacramento, CA 95814, 916-319-0827
- SELPAs - Service area covered by a special education local plan and the governance structure created under any of the planning options of Section 56205, 56206, 56208, 56211, 56213, 56241, 56243, 56244, & 56245 of the Education Code.
- data base: https://www.cde.ca.gov/sp/se/as/caselpas.asp
- California Teacher Credentialing - California Commission on Teacher Credentialing . https://www.ctc.ca.gov/
- Complaint Procedures - A complaint is a statement that a local school, school district, or county of education policy has been violated or that a state or federal law or regulation has been violated. CDE Resolution of Discrimination/Harassment Complaint Web page.
- If you have a complaint, submit it in writing to your school, district, or county office of education, following the governing board policies and procedures. The local governing board has ultimate authority over many subjects, includinghiring and evaluation of staff; assignments, student discipline, facility conditions
- If you have a complaint about educator misconduct, in addition to submitting a complaint to the school, district, or county office of education, you can report educator misconduct to the California Commission on Teacher Credentialing .
- If you have a complaint about special education, in addition to submitting a complaint to the school, district, or county office of education, you can report it to the Procedural Safeguards and Referral Service for their complaint process.
- If you have a complaint about student discrimination, harassment, intimidation, or bullying, please visit the CDE Resolution of Discrimination/Harassment Complaint Web page.
- Uniform Complaint Procedures - The responsibilities of the complainant, the local educational agency, and the California Department of Education according to California Code of Regulations, Title 5, sections 4600-4687.
- If you have a complaint about student discrimination, harassment, intimidation, or bullying, please visit the CDE Resolution of Discrimination/Harassment Complaint Web page.
- Resources on IEPs for Children with Disabilities from CDE - Special Education Division | [email protected] | 916-445-4613
- United States Department of Education, Office of Special Education Programs (OSEP) . Topic briefs include a summary of all relevant statutory language around that topic, along with citations and cross-references to other related briefs when applicable
- Standards-Based Individualized Education Program Examples (PDF)
A seven-step process to be used in developing a standards-based IEP. Each step is followed by guiding questions for the IEP team to consider in making data-based decisions. - A Seven-Step Process to Creating Standards-based IEPs (PDF)
This companion document provides the steps and guiding questions in a brief two-page document. - A Guide to the Individualized Education Program
United States Department of Education guidance to assist educators, parents, and state and local educational agencies in implementing the requirements of Part B of the IDEA regarding IEPs . - Individualized Education Program (IEP), Team Meetings and Changes to the IEP (PDF) explains changes in procedures for IEP meetings, including information about membership, attendance, and making changes to the IEP. https://www.cde.ca.gov/sp/se/sr/iepresources.asp
- Resources Related to IDEA 2004 - Special Education Division | [email protected] | 916-445-4613
- Tool Kit on Teaching and Assessing Students with Disabilities
Information, including research briefs and resources designed to improve instruction, assessment, and accountability for students with disabilities. The Tool Kit is intended to assist state personnel, schools, and families in their efforts to ensure that all students with disabilities receive a quality education. - IDEA Parent Guide
This guide describes the special education process with special emphasis on the category of specific learning disability and includes parent perspectives, terms helpful to know, and practical materials for parents (e.g., checklists, sample letters, charts, and questions to ask). This guide produced by the National Center for Learning Disabilities (NCLD). - Response to Instruction & Intervention
A general education approach of high quality instruction, early intervention, and prevention and behavioral strategies.
- Tool Kit on Teaching and Assessing Students with Disabilities
- Special Education Transportation Guidelines - Guidelines for use by Individualized Education Program (IEP) Teams when determining required transportation services. https://www.cde.ca.gov/sp/se/lr/trnsprtgdlns.asp
- Special Eductation Funding Guidelines - Distribution of state funds for special education programs. https://www.cde.ca.gov/fg/aa/se/index.asp
- CONTACT: Principal Apportionment Section | [email protected] | 916-324-4541
https://www.fiscaltiger.com/employment-resources-for-individuals-with-learning-disabilities/.National Disabilities Organizations & Information Groups
Adaptive Baseball / Little League Challenger Div.- Co-ed program for youth ages 5-21; Little League Baseball's adaptive division strives to accommodate the needs of every individual child to promote interpersonal/physical development and fun. A Federal Non-Profit, partnering with national medical communities for a safe program.
Samuel D. Ranck
539 US Route 15 Hwy
PO Box 3485
Williamsport, PA 17701-0485
(570) 326-1921 Ext. 254; (570) 326-1074 (fax)
Email: sranck | at | LittleLeague.org
Web: http://www.littleleague.org
Co-ed program for youth ages 5-21; Little League Baseball's adaptive division strives to accommodate the needs of every individual child to promote interpersonal/physical development and fun. A Federal Non-Profit, partnering with national medical communities for a safe program.
African-American Juvenile Justice Project - Legal advocacy for children. Provide services in chold welfare, education, health, housing and juvenile justice/delinquency.
Sherri Jefferson, Esq.
Post Office Box 2041
Jonesboro, GA 30236
(770) 374-9591
Email: info | at | aajjp.org
Web: http://www.aajjp.org
Alexander Graham Bell Association for the Deaf and Hard of Hearing
(202) 337-5220; (202) 337-5221 (TTY)
Email: info | at | agbell.org
Web: www.agbell.org
Alliance for Technology Access
(800) 455-7970; (415) 455-4575; (415) 455-0491 (TTY)
Email: atainfo | at | ataccess.org
Web: www.ataccess.org
American Brain Tumor Association
(847) 827-9910; (800) 886-2282 (Patient Services)
Email: info | at | abta.org
Web: www.abta.org/
American Council of the Blind
(800) 424-8666; (202) 467-5081
Email: ncrabb | at | erols.com
Web: www.acb.org
American Council on Rural Special Education (ACRES)
(785) 532-2737
Email: acres | at | ksu.edu
Web: http://www.acres-sped.org/
American Diabetes Association - The American Diabetes Association is committed to ending discrimination against people with diabetes through its legal advocacy program.
Government Affairs and Advocacy Division
1701 N. Beauregard Street
Alexandria, VA 22311
(703) 549-1500 or (800) DIABETES
Web: www.diabetes.org
American Foundation for the Blind (AFB)
(800) 232-5463; (212) 502-7662 (TTY)
Publications available in Spanish
Email: afbinfo | at | afb.net
Web: www.afb.org
American Occupational Therapy Association (AOTA)
(301) 652-2682 (Voice)
Web: www.aota.org
American Physical Therapy Association (APTA)
(800) 999-2782; (703) 684-2782; (703) 683-6748 (TTY)
Email: practice | at | apta.org
Web: www.apta.org
American Society for Deaf Children
(800) 942-2732; (717) 334-7922 (V/TTY)
Email: ASDC1 | at | aol.com
Web: www.deafchildren.org
American Speech-Language-Hearing Association (ASHA) - publications available in Spanish; Spanish speaker on staff.
(800) 498-2071 (V/TTY); (301) 571-0457 (TTY)
Email: actioncenter | at | asha.org
Web: www.asha.org
Angelman Syndrome Foundation
(800) 432-6435; (630) 734-9267
Email: asf | at | adminsys.com
Web: www.angelman.org
Anxiety Disorders Association of America
(301) 231-9350
Email: AnxDis | at | adaa.org
Web: www.adaa.org
Aplastic Anemia & MDS International Foundation
(800) 747-2820; (410) 867-0242
Email: aamdsoffice | at | aol.com
Web: www.aamds.org
The Arc (formerly the Association for Retarded Citizens of the U.S.)
(301) 565-3842
Email: Info | at | thearc.org
Web: www.thearc.org
Asperger Syndrome Education Network (ASPEN®)
9 Aspen Circle
Edison, NJ 08820
(732) 321-0880
Email: info | at | aspennj.org
Website www.aspennj.org
Asthma and Allergy Foundation of America
(800) 727-8462; (202) 466-7643
Email: info | at | aafa.org
Web: www.aafa.org/
Attachment & Trauma Network, Inc. - Since 1995, ATN has provided support, education and advocacy for traumatized children and those with attachment disorders and their families.
Julie Beem, Executive Director
P.O. Box 164
Jefferson, MD 21755
(888) 656-9806; (770) 423-4824 (fax)
Email: julieb | at | attachtrauma.org
Web: http://www.attachtrauma.org
Attention Deficit Disorders Associations - Southern Region
(281) 897-0982
Email: oflanigan | at | adda-sr.org
Web: http://www.adda-sr.org/
Attention Deficit Disorder Resources - Quality ADHD information, resources and support provided by a national non-profit organization.
Cynthia Hammer
223 Tacoma Av So
Tacoma, WA 98402
(253) 759 5085; (253) 572 3700 (fax)
Email: office | at | addresources.org
Web: http://www.addresources.org
Autism Society of America
(800) 328-8476; (301) 657-0881
Publications available in Spanish
Web: www.autism-society.org
The Balanced Mind - The Balanced Mind Foundation is a web-based non-profit organization guiding families raising childdrent with mood disorder to the answers, support and stability they seek.
Nanci Schiman
820 Davis St., Ste. 520
Evanston, IL 60201
(847) 492-8519; (847) 492-8520 (fax)
Email: nschiman | at | thebalancedmind.org
Web: http://www.thebalancedmind.org/
Brain Injury Association of America - GIAA's mission is to advance awareness, research, treatment, and education and to improved the quality of life for all people affected by brain injury.
Mary Reitter, CFO
1608 Spring Hill Road, Suite 110
Vienna, VA 22182
(703) 761-0750; (703) 761-0755 (fax)
Email: mreitter | at | biausa.org
Web: http://www.biausa.org
Center for Mental Health Services, Knowledge Exchange Network
Publications available in Spanish
(800) 789-2647; (301) 443-9006 (TTY)
Email: ken | at | mentalhealth.org
Web: www.mentalhealth.org
Childhood Apraxia of Speech Association
(412) 343-7102
Email: helpdesk | at | apraxia-kids.org
Web: http://www.apraxia-kids.org
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
(800) 233-4050 (To request information packet)
Email: national | at | chadd.org
Web: www.chadd.org
Children's Craniofacial Association
(800) 535-3643; (972) 994-9902
Email: contactcca | at | ccakids.com
Web: www.ccakids.com
Children's Liver Alliance
(718) 987-6200
Email: Livers4Kids | at | earthlink.net
Chronic Fatigue & Immune Dysfunction Syndrome Association
(800) 442-3437; (704) 365-9755
Email: info | at | cfids.org
Web: www.cfids.org
Cleft Advocate - Cleft Advocate provides educational and networking opportunities for cleft lip/palate and other craniofacial patients and their families, including assistance with insurance issues.
(702) 228-8662; (702) 341-5351 (fax)
Email: debbie | at | cleftadvocate.org
Web: http://www.cleftadvocate.org
Council for Exceptional Children (CEC)
(703) 620-3660; (703) 264-9446 (TTY)
Email: cec | at | cec.sped.org
Web: www.cec.sped.org/
Craniofacial Foundation of America
(800) 418-3223; (423) 778-9192
Email: farmertm | at | erlanger.org
Cued language Network of America (CLNA)
P.O. Box 772
Heber City, Utah 84032
(866) 446-3855
Web: http://www.cuedlanguage.org
Disability and Business Technical Assistance Centers (DBTACs)
(800) 949-4232
Web: http://www.adata.org/dbtac.html
DisAbility.gov
Email: webmaster | at | disability.gov
Web: http://www.disability.gov/
Easter Seals-National Office
(800) 221-6827; (312) 726-6200; (312) 726-4258 (TTY)
Email: info | at | easter-seals.org
Web: www.easter-seals.org
EMPOWER Colorado - EMPOWER Colorado (Educational Movement: Parents Offering Wisdom, Encouragement & Resources) offers support, education and advocacy for families of children and adolescents with mental health needs.
2200 S. Jasmine Street
Denver, CO 80222
(866) 213-4631
Email: info | at | empowercolorado.com
Web: www.empowercolorado.com
Epilepsy Foundation-National Office
(800) 332-1000; (301) 459-3700
Publications available in Spanish; Spanish speaker on staff
Email: postmaster | at | efa.org
Web: www.efa.org
FACES: The National Craniofacial Association
(800) 332-2372; (423) 266-1632
Email: faces | at | faces-cranio.org
Web: www.faces-cranio.org
Families for Early Autism Treatment
P.O. Box 255722
Sacramento, CA 95865-5722
(916) 843-1536
Email:webmaster | at | feat.org
Web: www.feat.org
Families For Hands and Voices
P.O. Box 371926
Denver, CO 80237
(303) 300-9763; (866) 422-0422
Email: parentadvocate | at | handsandvoices.org
Web: http://www.handsandvoices.org
Family Village (community of disability-related resources)
Web: www.familyvillage.wisc.edu/
Family Voices (national coalition for children with special health care needs)
(888) 835-5669; (505) 867-2368
Email: kidshealth | at | familyvoices.org
Web:www.familyvoices.org
Father's Network
(425) 747-4004, ext. 218
Email: jmay | at | fathersnetwork.org
Web: www.fathersnetwork.org
Federation of Families for Children's Mental Health
(703) 684-7710
Publications available in Spanish
Email: ffcmh | at | ffcmh.com
Web: www.ffcmh.org
First Group America - provides transportation to children and adults with special needs throughout the United States and Canada using school buses, para transit buses, transit and Greyhound
Dona M. Beauchea
600 Vine Street Suite 1400
Cincinnati, OH 45202
(513) 419-3365
Email: dona.beauchea | at | firstgroup.com
Web: http://FirstGroupAmerica.com
Fiscal Tiger - Employment Resources for Individuals with Learning Disabilities
web:https://www.fiscaltiger.com/employment-resources-for-individuals-with-learning-disabilities/
Foundation for Ichthyosis & Related Skin Types
Web: http://www.scalyskin.org/
The Genetic Alliance (formerly the Alliance of Genetic Support Groups)
(800) 336-4363; (202) 966-5557
Email: info | at | geneticalliance.org
Web: www.geneticalliance.org
Hands & Voices - is a parent driven adocacy and support organization for families who have children who are deaf and hard of hearing.
Janet DesGeorges
PO Box 3093
Boulder, CO 80307
(303) 492-6283; (303) 492-3274 (fax)
Email: janet | at | handsandvoices.org
Web: http://www.handsandvoices.org
Hydrocephalus Association
(415) 732-7040
Email: hydroassoc | at | aol.com
Web: www.hydroassoc.org
ICAA - Advocacy services, consultations for schools, businesses, tutoring, therapy assistance, inclusion, accessibility support. The ICAA is dedicated to advancing futures.
Emily Malabey, President
PO Box 781
St. Peters, MO 63376
(314) 445-8788
Email: info | at | icaaonline.org
Web: http://www.icaaonline.org
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
(713) 520-0232
Email: ilru | at | ilru.org
Web: www.ilru.org
Institute on Independent Living
Email: admin | at | independentliving.org
Web: http://www.independentliving.org/
International Dyslexia Association (formerly the Orton Dyslexia Society)
(800) 222-3123; (410) 296-0232
Email: info | at | interdys.org
Web: www.interdys.org
International Fibrodysplaisa Ossificans Progressiva Association (IFOPA)
P.O.Box 196217
Winter Springs, FL 32719-6217
Note: This organization is based in FL but has members around the world.
(407) 365-4194
Email: together | at | ifopa.org
Web: http://www.ifopa.org/
International Resource Center for Down Syndrome
(216) 621-5858; (800) 899-3039 (toll-free in OH only)
Email: hf854 | at | cleveland.freenet.edu
International Rett Syndrome Association
(800) 818-7388; (301) 856-3334
Email: irsa | at | rettsyndrome.org
Web: www.rettsyndrome.org
IsoDicentric 15, Advocacy, Exchange & Support -is abbreviated idic(15), is a chromosome abnormality which a child is born with extra genetic material; Affects - development disabilities, including cognitive disabilities, autism and seizure disorders.
18 Kings Road
Canton, MA 02021
(617) 686-8405
Web: http://www.IDIC15.org
Jonah & The Whale Foundation - The foundation provides families with parent binders and resource materials to encourage organizations of medical and educational information for more responsible communication between parties involved.
Mannie Taimuty-Loomis
P.O. Box 981
Mars, PA 16046
(877) 49-JONAH; (877) 495-6624; (724) 772-4998 (fax)
Email: Info | at | JTWF.org
Web: http://www.JTWF.org
KPS4Parents, Inc. - a non-profit lay advocacy organization representing students throught the US, mostlin in CA. They also provide paralegal support to attorneys representing students with disabilities
Anne M. Zachry
2390-C Las Posas Rd #482
Camarillo, CA 93010
(877) 536-5940
Email: info | at | kps4parents.org
Web: http://kps4parents.org
Learning Disabilities Association of America (LDA) - To create opportunities for success for all individuals affected by learning disabilities through support, education and advocacy.
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
Email: info | at | ldaamerica.org
Web: https://ldaamerica.org/
Leukemia & Lymphoma Society (formerly Leukemia Society of America)
(800) 955-4LSA; (212) 573-8484
Email: infocenter | at | leukemia-lymphoma.org
Web: www.leukemia-lymphoma.org
Little People of America-National Headquarters
(888) LPA-2001
Spanish speaker on staff
Email: LPADataBase | at | juno.com
Web: www.lpaonline.org
March of Dimes Birth Defects Foundation
(914) 428-7100; (888) 663-4637
Publications available in Spanish
Email: resourcecenter | at | modimes.org
Web: http://www.marchofdimes.org
Muscular Dystrophy Association (MDA)
(800) 572-1717; (520) 529-2000
Publications available in Spanish
Email: mda | at | mdausa.org
Web: www.mdausa.org
National Alliance for the Mentally Ill (NAMI)
(800) 950-6264; (703) 524-7600; (703) 516-7991 (TTY)
Publications available in Spanish
Email: namiofc | at | aol.com
Web: www.nami.org
National Association of the Deaf
(301) 587-1788; (301) 587-1789 (TTY)
Email: nadinfo | at | nad.org
Web: www.nad.org
National Association of Private Schools for Exceptional Children (NAPSEC)
(202) 408-3338
Email: napsec | at | aol.com
Web: www.napsec.com
National Ataxia Foundation
(612) 553-0020
Email: naf | at | mr.net
Web: www.ataxia.org
National Attention Deficit Disorder Association
Email: mail | at | add.org
Web: www.add.org
National Brain Tumor Foundation
(800) 934-2873; (510) 839-9777
Email: nbtf | at | braintumor.org
Web: www.braintumor.org
National Center on Low-Incidence Disabilities at UNC - addresses the challenges of school-age students who are blind/visually impaired, deaf/hard of hearing or have significant support needs/cognitive.
Sheryl Muir
Campus Box 146, McKee Hall
University of Northern Colorado
Greeley, CO 80639
(800) 395-2693; (970) 351-1061 (fax)
Email: sheryl.muir | at | unco.edu
Web: http://nclid.unco.edu/newnclid/
National Center for Learning Disabilities (NCLD)
(212) 545-7510; (888) 575-7373
Web: www.ncld.org
National Council on Independent Living
(703) 525-3406; (703) 525-4153 (TTY)
Email: ncil | at | ncil.org
Web: www.ncil.org
National Cued Speech Association (NCSA)
Information Services - Cued Speech Discovery
(800) 459-3529 (TTY)
Email: CuedSpDisc | at | aol.com
Web: http://www.cuedspeech.org
National Disability Rights Network (NDRN)* - NDRN is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities.
* formerly the National Association of Protection & Advocacy Systems (NAPAS)
900 Second Street, NE, Suite 211
Washington, DC 20002
(202) 408-9514 ext. 122; (202) 408-9520 (fax); (202) 408-9521 (TTY)
Web: http://www.ndrn.org
National Down Syndrome Congress - promote the interests of persons with Down Syndrome through advocacy, public awareness and information dissemination on all aspects of Down Syndrome. The NDSC is a not-for-profit organization formed in 1973, governed by a 22 member Board of Directors, including individual with Down syndrome.
1370 Center Drive Suite 102
Atlanta, GA 30338
(800) 232-6372; (770) 604-9500; (770) 604-9898 (fax)
Email: info | at | ndsccenter.org
Web: http://www.ndsccenter.org
National Down Syndrome Society
(800) 221-4602; (212) 460-9330
Email: info | at | ndss.org
Web: www.ndss.org
National Family Association for Deaf-Blind (NFADB)
111 Middle Neck Rd.
Sands Point, NY 11050-1129
(800) 255-0411, ext. 275
Email: NFADB | at | aol.com
Web: www.nfadb.org
National Federation of the Blind
200 East Wells Street
Baltimore, MD 21230
(410) 659-9314
Email: pmaurer | at | nfb.org
Web: www.nfb.org
National Fragile X Foundation - The NFxF unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, advance research toward improved treatments and a cure for Fragile X.
2100 M St. NW
Ste 170 Box 302
Washington, DC 20037
(800) 688-8765; (202) 747-6208 (fax)
Email: natlfx | at | fragile.org
Web: http://fragilex.org
National Library Service for the Blind & Physically Handicapped
(800) 424-8567; (202) 707-5100
Publications available in Spanish
Email: nls | at | loc.gov
Web: www.loc.gov/nls
National Mental Health Association
(800) 969-6642; (703) 684-7722; (800) 433-5959 (TTY)
Publications available in Spanish
Email: nmhainfo | at | aol.com
Web: www.nmha.org
National Multiple Sclerosis Society
(800) 344-4867; (212) 986-3240
Email: info | at | nmss.org
Web: www.nmss.org
National Neurofibromatosis Foundation
(800) 323-7938; (212) 344-6633
Email: nnff | at | nf.org
Web: www.nf.org
National Organization of Parents of Blind Children - a membership organization of parents working toward a better future for blind children by promoting blindness skills, fostering self-esteem and utilizing blind adult role models
Carol Castellano, President
National Federation of the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314; (410) 685-5653 (fax)
Email: carol_castellano | at | verizon.net
Web: http://www.nfb.org/nopbc
National Organization on Fetal Alcohol Syndrome (NOFAS)
(800) 666-6327; (202) 785-4585
Email: nofas | at | erols.com
Web: www.nofas.org
National Parent Network on Disabilities
(202) 463-2299 (V/TTY)
Email: npnd | at | cs.com
National Parent to Parent Support and Information System, Inc.
(800) 651-1151; (706) 374-3822
Email: nppsis | at | ellijay.com
National Reye's Syndrome Foundation
(800) 233-7393; (419) 636-2679
Email: nrsf | at | reyessyndrome.org
Web: www.reyessyndrome.org
National Scoliosis Foundation
(800) 673-6922; (781) 341-6333
Email: scoliosis | at | aol.com
National Spinal Cord Injury Association
(800) 962-9629; (301) 588-6959
Email: nscia2 | at | aol.com
Web: www.spinalcord.org
National Stuttering Association
(800) 364-1677; (714) 693-7480
Email: nsastutter | at | aol.com
Web: www.nsastutter.org
National Tuberous Sclerosis Association
(800) 225-6872; (301) 459-9888
Email: ntsa | at | ntsa.org
Web: http://www.tsalliance.org/
Neurofibromatosis, Inc.
(800) 942-6825; (301) 577-8984
Email: NFInc1 | at | aol.com
Web: www.nfinc.org
Obsessive Compulsive Foundation, Inc.
(203) 315-2190
Email: info | at | ocfoundation.org
Web: www.ocfoundation.org
Oregon Parents United
(541) 389-0004
Email: OPU | at | peak.org
Web: www.oregonparentsunited.org
Osteogenesis Imperfecta Foundation
(800) 981-BONE; (301) 947-0083
Email: bonelink | at | aol.com
Web: www.oif.org
PANDAS Network A 501C3 nonprofit organization dedicated to improving the diagnosis and treatment of children with PANDAS and PANS - Pediatric Autoimmune Neuropsychiatrict Disorders.
Diana Pohlman, Exec. Director
655 Oak Grove Avenue #1373
Menlo Park, CA 94026
Email: pandasnetwork | at | gmail.com
Web: http://pandasnetwork.org/
Parents Helping Parents: Parent-Directed Family Resource Center for Children with Special Needs
(408) 727-5775
Publications available in Spanish; Spanish speaker on staff
Email: info | at | php.com
Web: www.php.com
Parents of Galactosemic Children, Inc. (PGC)
(775) 626-0885
Web: www.galactosemia.org
Pathways Awareness Foundation
(800) 955-2445; (312) 236-7411 (TTY)
Brochure and video available in Spanish
Web: www.pathwaysawareness.org
* Prader-Willi Syndrome Association (USA) - an organization of families and professionals working together to offer support and provide education and advocacy for people and families living with PWS.
8588 Potter Park Drive, Suite 500
Sarasota, FL 34238
(800) 926-4797; (941) 312-0142 (fax)
Email: cic3 | at | pwsausa.org
President's Committee's Job Accommodation Network
(800) 526-7234 (Voice/TTY)
Email: jan | at | .icdi.wvu.edu
Web: www.jan.wvu.edu
Recording for the Blind & Dyslexic
20 Roszel Road
Princeton, NJ 08540
(800) 221-4792; (609) 987-8116 (fax)
Email: custserv | at | rfbd.org
Web: http://www.rfbd.org
Registry of Interpreters for the Deaf
(301) 608-0050 (V/TTY)
Email: info | at | rid.org
Web: www.rid.org
Silver Linings Foundation - A national nonprofit public charity providing special needs care guides, healthcare education, resources and equipment to individuals with special needs regardless of age, disability or location.
Erin Lindenmuth
832 11th Ave
York, PA 17402
(717) 515-8075
Email: erinlindenmuth | at | yahoo.com
Web: http://www.silverliningsfoundation.org
Smart Kids with Learning Disabilities - is a non-profit organization producing a national newsletter for parents of children with LD and ADHD (mailed to members in 49 states) and maintaining a website that is recommended by the CCLD. They also offer regional outreach programs.
PO Box 2726
Westport, CT 06880
(203) 226-6831
Email: Info | at | SmartKidswithLD.org
Web: www.SmartKidswithLD.org
Southeastern Rett Syndrome Alliance - Providing a network of information and emotional support for families and caregivers of Rett Syndrome children and adults; and to increase public awareness of Rett Syndrome.
7564 Windsong Drive
Trussville, AL 35173-1898
(205) 661-9597
Email: admin | at | serett.org
Web: http://www.serett.org
Special Olympics International
(202) 628-3630
Publications available in Spanish and French; Spanish & French speaker on staff
Email: specialolympics | at | msn.com
Web: www.specialolympics.org/
Specialized Training of Military Parents (STOMP) - provided military parents with individual assistance & information about rights/responsibilities in special education services for their children located in the United States or overseas. STOMP serves all military families stationed in the U.S. and overseas.
6316 S 12th Street
Tacoma, WA 98465
(800) 572-7368; (253) 565-2266; (253) 566-8052 (fax)
Email: stomp | at | washingtonpave.com
Web: http://www.stompproject.org
Spina Bifida Association of America
(800) 621-3141; (202) 944-3285
Publications available in Spanish
Email: sbaa | at | sbaa.org
Web: www.sbaa.org
Stuttering Foundation of America - provides free online resources to those who stutter and their families, works towards the prevention and improved treatment of stuttering and supports research into the causes of stuttering.
3100 Walnut Grove Rd, Suite 603
PO Box 11749
Memphis, TN 38111-0749
(800) 992-9392; (901) 452-7343; (901) 452-3931 (fax)
Email: info | at | stutteringhelp.org
Web: http://www.stutteringhelp.org
TASH (formerly The Association for Persons with Severe Handicaps)
(410) 828-8274; (410) 828-1306 (TTY)
Email: info | at | tash.org
Web: www.tash.org
Technical Assistance Alliance for Parent Centers (the Alliance)
(888) 248-0822; (952) 838-9000
Spanish speaker on staff
Email: alliance | at | taalliance.org
Web: www.taalliance.org
Theravive - a network and directory of licensed therapists and psychologists throughout North America. Theravive helps people find the right licensed therapist with the goal of lowering stigma by making mental health care accessibility easy and nonthreatening.
Tracey Kehler, Outreach
PO Box 18
Lynden, WA 98264
(360) 726-3104
Email: tracey | at | theravive.com
Web: https://www.theravive.com/cities
Tourette Syndrome Association
(800) 237-0717; (718) 224-2999
Email: ts | at | tsa-usa.org
Web: http://tsa-usa.org/
Trace Research & Development Center
(608) 262-6966; (608) 262-5408 (TTY)
Email: info | at | trace.wisc.edu
Web: http://trace.wisc.edu/
Uniquely Gifted
Internet Resources for Gifted/Special Needs Children
Web: http://www.uniquelygifted.org
United Cerebral Palsy Association, Inc.
(202) 776-0406; (800) 872-5827; (202) 973-7197 (TTY)
Publications available in Spanish
Email: ucpnatl | at | ucpa.org
Web: www.ucpa.org
US National Easter Seals
230 West Monroe Street, Suite 1800
Chicago, IL 60606
(312) 726-6200; (312) 726-4258 (TTY); (312) 726-1494 (fax); (800) 221-6827
Web: http://www.easter-seals.org/
Williams Syndrome Association, Inc.
(248) 541-3630
Williams Syndrome Family of Hope - a grassroots not for profit organization that has formed by families for families. Their mission is to provide support, resources, education and financial assistance to those affected by Williams Syndrome.
204 37th Avenue North, Suite 358
St. Petersburg, FL 33704
(727) 557-7177
Email: penny | at | wsfamilyofhope.org
Web: http://www.wsfamilyofhope.org
Adaptive Baseball / Little League Challenger Div.- Co-ed program for youth ages 5-21; Little League Baseball's adaptive division strives to accommodate the needs of every individual child to promote interpersonal/physical development and fun. A Federal Non-Profit, partnering with national medical communities for a safe program.
Samuel D. Ranck
539 US Route 15 Hwy
PO Box 3485
Williamsport, PA 17701-0485
(570) 326-1921 Ext. 254; (570) 326-1074 (fax)
Email: sranck | at | LittleLeague.org
Web: http://www.littleleague.org
Co-ed program for youth ages 5-21; Little League Baseball's adaptive division strives to accommodate the needs of every individual child to promote interpersonal/physical development and fun. A Federal Non-Profit, partnering with national medical communities for a safe program.
African-American Juvenile Justice Project - Legal advocacy for children. Provide services in chold welfare, education, health, housing and juvenile justice/delinquency.
Sherri Jefferson, Esq.
Post Office Box 2041
Jonesboro, GA 30236
(770) 374-9591
Email: info | at | aajjp.org
Web: http://www.aajjp.org
Alexander Graham Bell Association for the Deaf and Hard of Hearing
(202) 337-5220; (202) 337-5221 (TTY)
Email: info | at | agbell.org
Web: www.agbell.org
Alliance for Technology Access
(800) 455-7970; (415) 455-4575; (415) 455-0491 (TTY)
Email: atainfo | at | ataccess.org
Web: www.ataccess.org
American Brain Tumor Association
(847) 827-9910; (800) 886-2282 (Patient Services)
Email: info | at | abta.org
Web: www.abta.org/
American Council of the Blind
(800) 424-8666; (202) 467-5081
Email: ncrabb | at | erols.com
Web: www.acb.org
American Council on Rural Special Education (ACRES)
(785) 532-2737
Email: acres | at | ksu.edu
Web: http://www.acres-sped.org/
American Diabetes Association - The American Diabetes Association is committed to ending discrimination against people with diabetes through its legal advocacy program.
Government Affairs and Advocacy Division
1701 N. Beauregard Street
Alexandria, VA 22311
(703) 549-1500 or (800) DIABETES
Web: www.diabetes.org
American Foundation for the Blind (AFB)
(800) 232-5463; (212) 502-7662 (TTY)
Publications available in Spanish
Email: afbinfo | at | afb.net
Web: www.afb.org
American Occupational Therapy Association (AOTA)
(301) 652-2682 (Voice)
Web: www.aota.org
American Physical Therapy Association (APTA)
(800) 999-2782; (703) 684-2782; (703) 683-6748 (TTY)
Email: practice | at | apta.org
Web: www.apta.org
American Society for Deaf Children
(800) 942-2732; (717) 334-7922 (V/TTY)
Email: ASDC1 | at | aol.com
Web: www.deafchildren.org
American Speech-Language-Hearing Association (ASHA) - publications available in Spanish; Spanish speaker on staff.
(800) 498-2071 (V/TTY); (301) 571-0457 (TTY)
Email: actioncenter | at | asha.org
Web: www.asha.org
Angelman Syndrome Foundation
(800) 432-6435; (630) 734-9267
Email: asf | at | adminsys.com
Web: www.angelman.org
Anxiety Disorders Association of America
(301) 231-9350
Email: AnxDis | at | adaa.org
Web: www.adaa.org
Aplastic Anemia & MDS International Foundation
(800) 747-2820; (410) 867-0242
Email: aamdsoffice | at | aol.com
Web: www.aamds.org
The Arc (formerly the Association for Retarded Citizens of the U.S.)
(301) 565-3842
Email: Info | at | thearc.org
Web: www.thearc.org
Asperger Syndrome Education Network (ASPEN®)
9 Aspen Circle
Edison, NJ 08820
(732) 321-0880
Email: info | at | aspennj.org
Website www.aspennj.org
Asthma and Allergy Foundation of America
(800) 727-8462; (202) 466-7643
Email: info | at | aafa.org
Web: www.aafa.org/
Attachment & Trauma Network, Inc. - Since 1995, ATN has provided support, education and advocacy for traumatized children and those with attachment disorders and their families.
Julie Beem, Executive Director
P.O. Box 164
Jefferson, MD 21755
(888) 656-9806; (770) 423-4824 (fax)
Email: julieb | at | attachtrauma.org
Web: http://www.attachtrauma.org
Attention Deficit Disorders Associations - Southern Region
(281) 897-0982
Email: oflanigan | at | adda-sr.org
Web: http://www.adda-sr.org/
Attention Deficit Disorder Resources - Quality ADHD information, resources and support provided by a national non-profit organization.
Cynthia Hammer
223 Tacoma Av So
Tacoma, WA 98402
(253) 759 5085; (253) 572 3700 (fax)
Email: office | at | addresources.org
Web: http://www.addresources.org
Autism Society of America
(800) 328-8476; (301) 657-0881
Publications available in Spanish
Web: www.autism-society.org
The Balanced Mind - The Balanced Mind Foundation is a web-based non-profit organization guiding families raising childdrent with mood disorder to the answers, support and stability they seek.
Nanci Schiman
820 Davis St., Ste. 520
Evanston, IL 60201
(847) 492-8519; (847) 492-8520 (fax)
Email: nschiman | at | thebalancedmind.org
Web: http://www.thebalancedmind.org/
Brain Injury Association of America - GIAA's mission is to advance awareness, research, treatment, and education and to improved the quality of life for all people affected by brain injury.
Mary Reitter, CFO
1608 Spring Hill Road, Suite 110
Vienna, VA 22182
(703) 761-0750; (703) 761-0755 (fax)
Email: mreitter | at | biausa.org
Web: http://www.biausa.org
Center for Mental Health Services, Knowledge Exchange Network
Publications available in Spanish
(800) 789-2647; (301) 443-9006 (TTY)
Email: ken | at | mentalhealth.org
Web: www.mentalhealth.org
Childhood Apraxia of Speech Association
(412) 343-7102
Email: helpdesk | at | apraxia-kids.org
Web: http://www.apraxia-kids.org
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
(800) 233-4050 (To request information packet)
Email: national | at | chadd.org
Web: www.chadd.org
Children's Craniofacial Association
(800) 535-3643; (972) 994-9902
Email: contactcca | at | ccakids.com
Web: www.ccakids.com
Children's Liver Alliance
(718) 987-6200
Email: Livers4Kids | at | earthlink.net
Chronic Fatigue & Immune Dysfunction Syndrome Association
(800) 442-3437; (704) 365-9755
Email: info | at | cfids.org
Web: www.cfids.org
Cleft Advocate - Cleft Advocate provides educational and networking opportunities for cleft lip/palate and other craniofacial patients and their families, including assistance with insurance issues.
(702) 228-8662; (702) 341-5351 (fax)
Email: debbie | at | cleftadvocate.org
Web: http://www.cleftadvocate.org
Council for Exceptional Children (CEC)
(703) 620-3660; (703) 264-9446 (TTY)
Email: cec | at | cec.sped.org
Web: www.cec.sped.org/
Craniofacial Foundation of America
(800) 418-3223; (423) 778-9192
Email: farmertm | at | erlanger.org
Cued language Network of America (CLNA)
P.O. Box 772
Heber City, Utah 84032
(866) 446-3855
Web: http://www.cuedlanguage.org
Disability and Business Technical Assistance Centers (DBTACs)
(800) 949-4232
Web: http://www.adata.org/dbtac.html
DisAbility.gov
Email: webmaster | at | disability.gov
Web: http://www.disability.gov/
Easter Seals-National Office
(800) 221-6827; (312) 726-6200; (312) 726-4258 (TTY)
Email: info | at | easter-seals.org
Web: www.easter-seals.org
EMPOWER Colorado - EMPOWER Colorado (Educational Movement: Parents Offering Wisdom, Encouragement & Resources) offers support, education and advocacy for families of children and adolescents with mental health needs.
2200 S. Jasmine Street
Denver, CO 80222
(866) 213-4631
Email: info | at | empowercolorado.com
Web: www.empowercolorado.com
Epilepsy Foundation-National Office
(800) 332-1000; (301) 459-3700
Publications available in Spanish; Spanish speaker on staff
Email: postmaster | at | efa.org
Web: www.efa.org
FACES: The National Craniofacial Association
(800) 332-2372; (423) 266-1632
Email: faces | at | faces-cranio.org
Web: www.faces-cranio.org
Families for Early Autism Treatment
P.O. Box 255722
Sacramento, CA 95865-5722
(916) 843-1536
Email:webmaster | at | feat.org
Web: www.feat.org
Families For Hands and Voices
P.O. Box 371926
Denver, CO 80237
(303) 300-9763; (866) 422-0422
Email: parentadvocate | at | handsandvoices.org
Web: http://www.handsandvoices.org
Family Village (community of disability-related resources)
Web: www.familyvillage.wisc.edu/
Family Voices (national coalition for children with special health care needs)
(888) 835-5669; (505) 867-2368
Email: kidshealth | at | familyvoices.org
Web:www.familyvoices.org
Father's Network
(425) 747-4004, ext. 218
Email: jmay | at | fathersnetwork.org
Web: www.fathersnetwork.org
Federation of Families for Children's Mental Health
(703) 684-7710
Publications available in Spanish
Email: ffcmh | at | ffcmh.com
Web: www.ffcmh.org
First Group America - provides transportation to children and adults with special needs throughout the United States and Canada using school buses, para transit buses, transit and Greyhound
Dona M. Beauchea
600 Vine Street Suite 1400
Cincinnati, OH 45202
(513) 419-3365
Email: dona.beauchea | at | firstgroup.com
Web: http://FirstGroupAmerica.com
Fiscal Tiger - Employment Resources for Individuals with Learning Disabilities
web:https://www.fiscaltiger.com/employment-resources-for-individuals-with-learning-disabilities/
Foundation for Ichthyosis & Related Skin Types
Web: http://www.scalyskin.org/
The Genetic Alliance (formerly the Alliance of Genetic Support Groups)
(800) 336-4363; (202) 966-5557
Email: info | at | geneticalliance.org
Web: www.geneticalliance.org
Hands & Voices - is a parent driven adocacy and support organization for families who have children who are deaf and hard of hearing.
Janet DesGeorges
PO Box 3093
Boulder, CO 80307
(303) 492-6283; (303) 492-3274 (fax)
Email: janet | at | handsandvoices.org
Web: http://www.handsandvoices.org
Hydrocephalus Association
(415) 732-7040
Email: hydroassoc | at | aol.com
Web: www.hydroassoc.org
ICAA - Advocacy services, consultations for schools, businesses, tutoring, therapy assistance, inclusion, accessibility support. The ICAA is dedicated to advancing futures.
Emily Malabey, President
PO Box 781
St. Peters, MO 63376
(314) 445-8788
Email: info | at | icaaonline.org
Web: http://www.icaaonline.org
Independent Living Research Utilization Project
The Institute for Rehabilitation and Research
(713) 520-0232
Email: ilru | at | ilru.org
Web: www.ilru.org
Institute on Independent Living
Email: admin | at | independentliving.org
Web: http://www.independentliving.org/
International Dyslexia Association (formerly the Orton Dyslexia Society)
(800) 222-3123; (410) 296-0232
Email: info | at | interdys.org
Web: www.interdys.org
International Fibrodysplaisa Ossificans Progressiva Association (IFOPA)
P.O.Box 196217
Winter Springs, FL 32719-6217
Note: This organization is based in FL but has members around the world.
(407) 365-4194
Email: together | at | ifopa.org
Web: http://www.ifopa.org/
International Resource Center for Down Syndrome
(216) 621-5858; (800) 899-3039 (toll-free in OH only)
Email: hf854 | at | cleveland.freenet.edu
International Rett Syndrome Association
(800) 818-7388; (301) 856-3334
Email: irsa | at | rettsyndrome.org
Web: www.rettsyndrome.org
IsoDicentric 15, Advocacy, Exchange & Support -is abbreviated idic(15), is a chromosome abnormality which a child is born with extra genetic material; Affects - development disabilities, including cognitive disabilities, autism and seizure disorders.
18 Kings Road
Canton, MA 02021
(617) 686-8405
Web: http://www.IDIC15.org
Jonah & The Whale Foundation - The foundation provides families with parent binders and resource materials to encourage organizations of medical and educational information for more responsible communication between parties involved.
Mannie Taimuty-Loomis
P.O. Box 981
Mars, PA 16046
(877) 49-JONAH; (877) 495-6624; (724) 772-4998 (fax)
Email: Info | at | JTWF.org
Web: http://www.JTWF.org
KPS4Parents, Inc. - a non-profit lay advocacy organization representing students throught the US, mostlin in CA. They also provide paralegal support to attorneys representing students with disabilities
Anne M. Zachry
2390-C Las Posas Rd #482
Camarillo, CA 93010
(877) 536-5940
Email: info | at | kps4parents.org
Web: http://kps4parents.org
Learning Disabilities Association of America (LDA) - To create opportunities for success for all individuals affected by learning disabilities through support, education and advocacy.
4156 Library Road
Pittsburgh, PA 15234
(412) 341-1515
Email: info | at | ldaamerica.org
Web: https://ldaamerica.org/
Leukemia & Lymphoma Society (formerly Leukemia Society of America)
(800) 955-4LSA; (212) 573-8484
Email: infocenter | at | leukemia-lymphoma.org
Web: www.leukemia-lymphoma.org
Little People of America-National Headquarters
(888) LPA-2001
Spanish speaker on staff
Email: LPADataBase | at | juno.com
Web: www.lpaonline.org
March of Dimes Birth Defects Foundation
(914) 428-7100; (888) 663-4637
Publications available in Spanish
Email: resourcecenter | at | modimes.org
Web: http://www.marchofdimes.org
Muscular Dystrophy Association (MDA)
(800) 572-1717; (520) 529-2000
Publications available in Spanish
Email: mda | at | mdausa.org
Web: www.mdausa.org
National Alliance for the Mentally Ill (NAMI)
(800) 950-6264; (703) 524-7600; (703) 516-7991 (TTY)
Publications available in Spanish
Email: namiofc | at | aol.com
Web: www.nami.org
National Association of the Deaf
(301) 587-1788; (301) 587-1789 (TTY)
Email: nadinfo | at | nad.org
Web: www.nad.org
National Association of Private Schools for Exceptional Children (NAPSEC)
(202) 408-3338
Email: napsec | at | aol.com
Web: www.napsec.com
National Ataxia Foundation
(612) 553-0020
Email: naf | at | mr.net
Web: www.ataxia.org
National Attention Deficit Disorder Association
Email: mail | at | add.org
Web: www.add.org
National Brain Tumor Foundation
(800) 934-2873; (510) 839-9777
Email: nbtf | at | braintumor.org
Web: www.braintumor.org
National Center on Low-Incidence Disabilities at UNC - addresses the challenges of school-age students who are blind/visually impaired, deaf/hard of hearing or have significant support needs/cognitive.
Sheryl Muir
Campus Box 146, McKee Hall
University of Northern Colorado
Greeley, CO 80639
(800) 395-2693; (970) 351-1061 (fax)
Email: sheryl.muir | at | unco.edu
Web: http://nclid.unco.edu/newnclid/
National Center for Learning Disabilities (NCLD)
(212) 545-7510; (888) 575-7373
Web: www.ncld.org
National Council on Independent Living
(703) 525-3406; (703) 525-4153 (TTY)
Email: ncil | at | ncil.org
Web: www.ncil.org
National Cued Speech Association (NCSA)
Information Services - Cued Speech Discovery
(800) 459-3529 (TTY)
Email: CuedSpDisc | at | aol.com
Web: http://www.cuedspeech.org
National Disability Rights Network (NDRN)* - NDRN is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities.
* formerly the National Association of Protection & Advocacy Systems (NAPAS)
900 Second Street, NE, Suite 211
Washington, DC 20002
(202) 408-9514 ext. 122; (202) 408-9520 (fax); (202) 408-9521 (TTY)
Web: http://www.ndrn.org
National Down Syndrome Congress - promote the interests of persons with Down Syndrome through advocacy, public awareness and information dissemination on all aspects of Down Syndrome. The NDSC is a not-for-profit organization formed in 1973, governed by a 22 member Board of Directors, including individual with Down syndrome.
1370 Center Drive Suite 102
Atlanta, GA 30338
(800) 232-6372; (770) 604-9500; (770) 604-9898 (fax)
Email: info | at | ndsccenter.org
Web: http://www.ndsccenter.org
National Down Syndrome Society
(800) 221-4602; (212) 460-9330
Email: info | at | ndss.org
Web: www.ndss.org
National Family Association for Deaf-Blind (NFADB)
111 Middle Neck Rd.
Sands Point, NY 11050-1129
(800) 255-0411, ext. 275
Email: NFADB | at | aol.com
Web: www.nfadb.org
National Federation of the Blind
200 East Wells Street
Baltimore, MD 21230
(410) 659-9314
Email: pmaurer | at | nfb.org
Web: www.nfb.org
National Fragile X Foundation - The NFxF unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, advance research toward improved treatments and a cure for Fragile X.
2100 M St. NW
Ste 170 Box 302
Washington, DC 20037
(800) 688-8765; (202) 747-6208 (fax)
Email: natlfx | at | fragile.org
Web: http://fragilex.org
National Library Service for the Blind & Physically Handicapped
(800) 424-8567; (202) 707-5100
Publications available in Spanish
Email: nls | at | loc.gov
Web: www.loc.gov/nls
National Mental Health Association
(800) 969-6642; (703) 684-7722; (800) 433-5959 (TTY)
Publications available in Spanish
Email: nmhainfo | at | aol.com
Web: www.nmha.org
National Multiple Sclerosis Society
(800) 344-4867; (212) 986-3240
Email: info | at | nmss.org
Web: www.nmss.org
National Neurofibromatosis Foundation
(800) 323-7938; (212) 344-6633
Email: nnff | at | nf.org
Web: www.nf.org
National Organization of Parents of Blind Children - a membership organization of parents working toward a better future for blind children by promoting blindness skills, fostering self-esteem and utilizing blind adult role models
Carol Castellano, President
National Federation of the Blind
1800 Johnson Street
Baltimore, MD 21230
(410) 659-9314; (410) 685-5653 (fax)
Email: carol_castellano | at | verizon.net
Web: http://www.nfb.org/nopbc
National Organization on Fetal Alcohol Syndrome (NOFAS)
(800) 666-6327; (202) 785-4585
Email: nofas | at | erols.com
Web: www.nofas.org
National Parent Network on Disabilities
(202) 463-2299 (V/TTY)
Email: npnd | at | cs.com
National Parent to Parent Support and Information System, Inc.
(800) 651-1151; (706) 374-3822
Email: nppsis | at | ellijay.com
National Reye's Syndrome Foundation
(800) 233-7393; (419) 636-2679
Email: nrsf | at | reyessyndrome.org
Web: www.reyessyndrome.org
National Scoliosis Foundation
(800) 673-6922; (781) 341-6333
Email: scoliosis | at | aol.com
National Spinal Cord Injury Association
(800) 962-9629; (301) 588-6959
Email: nscia2 | at | aol.com
Web: www.spinalcord.org
National Stuttering Association
(800) 364-1677; (714) 693-7480
Email: nsastutter | at | aol.com
Web: www.nsastutter.org
National Tuberous Sclerosis Association
(800) 225-6872; (301) 459-9888
Email: ntsa | at | ntsa.org
Web: http://www.tsalliance.org/
Neurofibromatosis, Inc.
(800) 942-6825; (301) 577-8984
Email: NFInc1 | at | aol.com
Web: www.nfinc.org
Obsessive Compulsive Foundation, Inc.
(203) 315-2190
Email: info | at | ocfoundation.org
Web: www.ocfoundation.org
Oregon Parents United
(541) 389-0004
Email: OPU | at | peak.org
Web: www.oregonparentsunited.org
Osteogenesis Imperfecta Foundation
(800) 981-BONE; (301) 947-0083
Email: bonelink | at | aol.com
Web: www.oif.org
PANDAS Network A 501C3 nonprofit organization dedicated to improving the diagnosis and treatment of children with PANDAS and PANS - Pediatric Autoimmune Neuropsychiatrict Disorders.
Diana Pohlman, Exec. Director
655 Oak Grove Avenue #1373
Menlo Park, CA 94026
Email: pandasnetwork | at | gmail.com
Web: http://pandasnetwork.org/
Parents Helping Parents: Parent-Directed Family Resource Center for Children with Special Needs
(408) 727-5775
Publications available in Spanish; Spanish speaker on staff
Email: info | at | php.com
Web: www.php.com
Parents of Galactosemic Children, Inc. (PGC)
(775) 626-0885
Web: www.galactosemia.org
Pathways Awareness Foundation
(800) 955-2445; (312) 236-7411 (TTY)
Brochure and video available in Spanish
Web: www.pathwaysawareness.org
* Prader-Willi Syndrome Association (USA) - an organization of families and professionals working together to offer support and provide education and advocacy for people and families living with PWS.
8588 Potter Park Drive, Suite 500
Sarasota, FL 34238
(800) 926-4797; (941) 312-0142 (fax)
Email: cic3 | at | pwsausa.org
President's Committee's Job Accommodation Network
(800) 526-7234 (Voice/TTY)
Email: jan | at | .icdi.wvu.edu
Web: www.jan.wvu.edu
Recording for the Blind & Dyslexic
20 Roszel Road
Princeton, NJ 08540
(800) 221-4792; (609) 987-8116 (fax)
Email: custserv | at | rfbd.org
Web: http://www.rfbd.org
Registry of Interpreters for the Deaf
(301) 608-0050 (V/TTY)
Email: info | at | rid.org
Web: www.rid.org
Silver Linings Foundation - A national nonprofit public charity providing special needs care guides, healthcare education, resources and equipment to individuals with special needs regardless of age, disability or location.
Erin Lindenmuth
832 11th Ave
York, PA 17402
(717) 515-8075
Email: erinlindenmuth | at | yahoo.com
Web: http://www.silverliningsfoundation.org
Smart Kids with Learning Disabilities - is a non-profit organization producing a national newsletter for parents of children with LD and ADHD (mailed to members in 49 states) and maintaining a website that is recommended by the CCLD. They also offer regional outreach programs.
PO Box 2726
Westport, CT 06880
(203) 226-6831
Email: Info | at | SmartKidswithLD.org
Web: www.SmartKidswithLD.org
Southeastern Rett Syndrome Alliance - Providing a network of information and emotional support for families and caregivers of Rett Syndrome children and adults; and to increase public awareness of Rett Syndrome.
7564 Windsong Drive
Trussville, AL 35173-1898
(205) 661-9597
Email: admin | at | serett.org
Web: http://www.serett.org
Special Olympics International
(202) 628-3630
Publications available in Spanish and French; Spanish & French speaker on staff
Email: specialolympics | at | msn.com
Web: www.specialolympics.org/
Specialized Training of Military Parents (STOMP) - provided military parents with individual assistance & information about rights/responsibilities in special education services for their children located in the United States or overseas. STOMP serves all military families stationed in the U.S. and overseas.
6316 S 12th Street
Tacoma, WA 98465
(800) 572-7368; (253) 565-2266; (253) 566-8052 (fax)
Email: stomp | at | washingtonpave.com
Web: http://www.stompproject.org
Spina Bifida Association of America
(800) 621-3141; (202) 944-3285
Publications available in Spanish
Email: sbaa | at | sbaa.org
Web: www.sbaa.org
Stuttering Foundation of America - provides free online resources to those who stutter and their families, works towards the prevention and improved treatment of stuttering and supports research into the causes of stuttering.
3100 Walnut Grove Rd, Suite 603
PO Box 11749
Memphis, TN 38111-0749
(800) 992-9392; (901) 452-7343; (901) 452-3931 (fax)
Email: info | at | stutteringhelp.org
Web: http://www.stutteringhelp.org
TASH (formerly The Association for Persons with Severe Handicaps)
(410) 828-8274; (410) 828-1306 (TTY)
Email: info | at | tash.org
Web: www.tash.org
Technical Assistance Alliance for Parent Centers (the Alliance)
(888) 248-0822; (952) 838-9000
Spanish speaker on staff
Email: alliance | at | taalliance.org
Web: www.taalliance.org
Theravive - a network and directory of licensed therapists and psychologists throughout North America. Theravive helps people find the right licensed therapist with the goal of lowering stigma by making mental health care accessibility easy and nonthreatening.
Tracey Kehler, Outreach
PO Box 18
Lynden, WA 98264
(360) 726-3104
Email: tracey | at | theravive.com
Web: https://www.theravive.com/cities
Tourette Syndrome Association
(800) 237-0717; (718) 224-2999
Email: ts | at | tsa-usa.org
Web: http://tsa-usa.org/
Trace Research & Development Center
(608) 262-6966; (608) 262-5408 (TTY)
Email: info | at | trace.wisc.edu
Web: http://trace.wisc.edu/
Uniquely Gifted
Internet Resources for Gifted/Special Needs Children
Web: http://www.uniquelygifted.org
United Cerebral Palsy Association, Inc.
(202) 776-0406; (800) 872-5827; (202) 973-7197 (TTY)
Publications available in Spanish
Email: ucpnatl | at | ucpa.org
Web: www.ucpa.org
US National Easter Seals
230 West Monroe Street, Suite 1800
Chicago, IL 60606
(312) 726-6200; (312) 726-4258 (TTY); (312) 726-1494 (fax); (800) 221-6827
Web: http://www.easter-seals.org/
Williams Syndrome Association, Inc.
(248) 541-3630
Williams Syndrome Family of Hope - a grassroots not for profit organization that has formed by families for families. Their mission is to provide support, resources, education and financial assistance to those affected by Williams Syndrome.
204 37th Avenue North, Suite 358
St. Petersburg, FL 33704
(727) 557-7177
Email: penny | at | wsfamilyofhope.org
Web: http://www.wsfamilyofhope.org